PatientSpot Formerly Known as ArthritisPower

Summary

Patient Power is a patient research network and database (registry) to collect prospective information about demographics, self-reported diagnoses and medications, and willingness to participate in research from participants with rheumatoid arthritis (RA), spondyloarthritis (SpA), other musculoskeletal conditions, chronic neurological conditions like migraine, chronic pulmonary conditions like Chronic Obstructive Pulmonary Disease (COPD), asthma, autoimmune dermatological conditions such as psoriasis, and other chronic inflammatory or immune-mediated conditions. In addition, since patients with chronic conditions often have other co-morbidities like cardiovascular health and obesity-related metabolic disorders, these conditions will also be included. Participants will provide information from their smartphones or personal computers. The information will be used by researchers and clinicians to help patients and their providers make better, more informed decisions about treatment of chronic conditions.

Conditions

• Rheumatoid Arthritis
• Ankylosing Spondylitis
• Fibromyalgia
• Gout
• Crohn Disease
• Juvenile Idiopathic Arthritis
• Lupus Erythematosus
• Myositis
• Osteoarthritis
• Osteoporosis
• Psoriasis
• Psoriatic Arthritis
• Scleroderma
• Dermatomyositis
• Inflammatory Bowel Diseases
• Polymyositis
• Axial Spondyloarthritis
• Diffuse Idiopathic Skeletal Hyperostosis
• Polymyalgia Rheumatica
• Giant Cell Arteritis
• Temporal Arteritis
• Wegener
• Relapsing Polychondritis
• Undifferentiated Connective Tissue Disease
• Spinal Cord Injuries
• Alzheimer Disease
• Amyotrophic Lateral Sclerosis
• Ataxia
• Bell Palsy
• Brain Tumor
• Cerebral Aneurysm
• Epilepsy
• Guillain-Barre Syndrome
• Headache
• Head Injury
• Hydrocephalus
• Lumbar Disc Disease
• Meningitis
• Multiple Sclerosis
• Muscular Dystrophy
• Neurocutaneous Syndromes
• Parkinson Disease
• Stroke
• Cluster Headache
• Tension-Type Headache
• Chronic Obstructive Pulmonary Disease
• Asthma
• Lung Cancer
• Cystic Fibrosis
• Sleep Apnea
• Eczema
• Alopecia
• Chronic Inflammation
• Unstable Angina
• Heart Attack
• Heart Failure
• Arrythmia
• Valve Heart Disease
• High Blood Pressure
• Congenital Heart Disease
• Peripheral Arterial Disease
• Diabetes
• Chronic Liver Disease
• Obesity

Sponsors & Collaborators

• University of Alabama at Birmingham

  collaborator OTHER

• Global Healthy Living Foundation

  lead OTHER

Eligibility

Min Age

19 Years

Sex

ALL

Healthy Volunteers

Yes

Timeline & Regulatory

Start

2015-04-01

Primary Completion

2025-03-01

Completion

2025-03-01

Countries

• United States

Study Locations