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Natural History of SMA

NCT05755451 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 1200

Last updated 2023-03-06

No results posted yet for this study

Summary

This is an investigator initiated observational study with the aim to record several aspects of function, care and adverse events in a large cohort of SMA patients followed longitudinally by using a structured academic disease registry.

Conditions

  • Muscular Atrophy, Spinal

Sponsors & Collaborators

  • University of Milan

    collaborator OTHER

  • Istituto Giannina Gaslini

    collaborator OTHER

  • Ospedale Pediatrico Bambin Gesù

    collaborator OTHER

  • University of Messina

    collaborator OTHER

  • Fondazione Policlinico Universitario Agostino Gemelli IRCCS

    lead OTHER

Principal Investigators

  • Eugenio Mercuri, MD · F Policlinico Gemelli IRCCS

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2018-06-21
Primary Completion
2033-12-30
Completion
2033-12-30

Countries

  • Italy

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT05755451 on ClinicalTrials.gov