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Swiss Registry for Neuromuscular Disorders

NCT05102916 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 2000

Last updated 2026-01-15

No results posted yet for this study

Summary

The Swiss Patient Registry for DMD/BMD and SMA was launched in 2008 in order to give Swiss patients access to new therapies. It was founded with the financial support of several patient organizations and research foundations. Since 2008, children, adolescents and adults with DMD, BMD and SMA are registered with the help of all major muscle centers in Switzerland. After nearly ten years of activity, the Swiss Patient Registry for DMD/BMD and SMA implemented several adaptations in 2018 to meet current and future expectations of patient's organizations, health authorities and research organizations.

Conditions

  • SMA
  • DMD
  • BMD
  • IMD
  • Congenital Muscular Dystrophy

Sponsors & Collaborators

  • University Hospital, Zürich

    collaborator OTHER

  • University Children's Hospital Basel

    collaborator OTHER

  • Insel Gruppe AG, University Hospital Bern

    collaborator OTHER

  • University of Lausanne Hospitals

    collaborator OTHER

  • Ente Ospedaliero Cantonale, Bellinzona

    collaborator OTHER

  • University Children's Hospital, Zurich

    collaborator OTHER

  • SwissPedNet - Swiss Research Network of Clinical Pediatric Hubs

    collaborator UNKNOWN

  • University of Bern

    lead OTHER

Principal Investigators

  • Claudia E Kuehni, Prof. MD · Institute of Social and Preventive Medicine (ISPM), University of Bern

Eligibility

Min Age
0 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2018-06-20
Primary Completion
2071-01-01
Completion
2071-01-01

Countries

  • Switzerland

Study Locations

More Related Trials

Entities

Diseases

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT05102916 on ClinicalTrials.gov