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International SMA Patient Registry

NCT00466349 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 3000

Last updated 2018-08-07

No results posted yet for this study

Summary

This is a registry of individuals affected by Spinal Muscular Atrophy (SMA) and/or family members of individuals affected by SMA. The purpose of the registry is to allow researchers studying the biological basis of SMA and potential therapies in SMA access to individuals interested in participating in research and/or experimental therapies. The International SMA Patient Registry is supported by CureSMA.

Conditions

  • Muscular Atrophy, Spinal

Sponsors & Collaborators

  • Cure SMA

    collaborator OTHER

  • Indiana University School of Medicine

    lead OTHER

Principal Investigators

  • Tatiana Foroud, PhD · Indiana University School of Medicine

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
1986-05-31
Primary Completion
2018-01-31
Completion
2018-01-31

Countries

  • United States

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT00466349 on ClinicalTrials.gov