The Living With a Long-Term Condition Study
NCT06072287 · Status: UNKNOWN · Type: OBSERVATIONAL · Enrollment: 600
Last updated 2023-10-12
Summary
Psychological distress (anxiety and depression) is common in and experienced differently by people living with long-term health conditions (LTCs). Being able to measure whether psychological distress is related to living with a LTC would allow researchers and clinicians to provide interventions specifically tailored to the challenges of living with a LTC and therefore provide the most appropriate support for these patients. Such a measure would also be useful in research to identify the presence of illness-related distress in different patient groups. This project will therefore create a new measure of illness-related distress that has applications for both research and clinical practice. This will involve the psychometric validation of the new illness-related distress measure to test how valid and reliable the measure is.
The aim of the project is to provide initial validation of the Illness Related Distress Scale in a community sample, recruited through online platforms. The objective of the study is to gather initial validity and reliability data for the scale.
Conditions
- Asthma
- Atrial Fibrillation
- Cancer
- Cerebrovascular Disorders
- Stroke
- CKD
- Copd
- Fibromyalgia
- Pain
- Heart Diseases
- Heart Disease Chronic
- Dementia
- Diabetes
- Epilepsy
- Heart Failure
- High Blood Pressure
- Hypertension
- Hiv
- AIDS
- IBD
- IBS
- Liver Diseases
- Long COVID
- Lupus Erythematosus
- Multiple Sclerosis
- Obesity
- Osteoarthritis
- Arthritis
- Rheumatoid Arthritis
- Osteoporosis
- Parkinson Disease
- Sickle Cell Disease
- Hepatitis
- Endometriosis
- PCOS
- Neurological Disorder
- POTS - Postural Orthostatic Tachycardia Syndrome
- MND (Motor Neurone DIsease)
- Cystic Fibrosis
- Migraine
- Spondylitis
- Celiac Disease
- Hidradenitis Suppurativa
- Eczema
- ME/CFS
Interventions
- DIAGNOSTIC_TEST
-
Living with LTC Questionnaire
A questionnaire that will ask about demographic information, mental wellbeing and distress related to chronic illness.
Sponsors & Collaborators
- lead OTHER
Principal Investigators
-
Rona Moss-Morris, PhD · King's College London
-
Annie Jones, PhD · King's College London
-
Emma Jenkinson, MSc · King's College London
-
Natasha Seaton, MSc · King's College London
Eligibility
- Min Age
- 18 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2023-06-28
- Primary Completion
- 2023-12-31
- Completion
- 2024-01-10
Countries
- United Kingdom
Study Locations
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Entities
- Arthritis
- Asthma
- Atrial Fibrillation
- Cancer
- Celiac Disease
- CKD
- COPD
- Cystic Fibrosis
- Dementia
- Diabetes
- Eczema
- Epilepsy
- Heart Failure
- Hidradenitis Suppurativa
- High Blood Pressure
- HIV
- Hypertension
- IBD
- Liver Diseases
- Long COVID
- Migraine
- Multiple Sclerosis
- Obesity
- Osteoarthritis
- Osteoporosis
- Pain
- Rheumatoid Arthritis
- Sickle Cell Disease
- Stroke