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Adrenoleukodystrophy National Registry Study

NCT03789721 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 1000

Last updated 2026-05-12

No results posted yet for this study

Summary

The aim of this registry to understand the natural history and disease progression in ALD and potentially develop bio-markers using the biospecimens collected using this registry.

Conditions

  • ALD (Adrenoleukodystrophy)
  • Adrenoleukodystrophy
  • Cerebral Adrenoleukodystrophy

Interventions

OTHER

Medical Record Abstraction

Collect clinical and epidemiological data through medical record abstraction and self-reported questionnaire survey semi-annually.

OTHER

Biospecimen Sample Collection

Collect research samples, when feasible for those diagnosed with ALD.

Sponsors & Collaborators

  • Masonic Cancer Center, University of Minnesota

    lead OTHER

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2019-05-01
Primary Completion
2030-02-28
Completion
2030-02-28

Countries

  • United States

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT03789721 on ClinicalTrials.gov