Registry Study of Assistive Devices, Medicines and Healthcare Measures in ALS, SMA and Other Neurological Diseases.

NCT05852418 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 25000

Last updated 2025-01-29

No results posted yet for this study

Summary

This registry study aims to collect data on the provision of assistive devices, medicines, and other healthcare measures, such as ventilation therapy and nutrition support, in patients with Amyotrophic lateral sclerosis (ALS), Spinal muscular atrophy (SMA) and other neurological disorders. The data collected should describe the clinical practice, meaning real-world evidence and patient-reported outcomes.

Conditions

Sponsors & Collaborators

  • Charite University, Berlin, Germany

    collaborator OTHER
  • Ambulanzpartner Soziotechnologie APST GmbH

    lead INDUSTRY

Principal Investigators

  • Thomas Meyer, Prof. Dr. · Ambulanzpartner Soziotechnologie APST GmbH

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2015-10-30
Primary Completion
2028-12-31
Completion
2029-06-30

Countries

  • Germany

Study Locations

More Related Trials

Entities

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT05852418 on ClinicalTrials.gov