Registry Study of Assistive Devices, Medicines and Healthcare Measures in ALS, SMA and Other Neurological Diseases.
NCT05852418 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 25000
Last updated 2025-01-29
Summary
This registry study aims to collect data on the provision of assistive devices, medicines, and other healthcare measures, such as ventilation therapy and nutrition support, in patients with Amyotrophic lateral sclerosis (ALS), Spinal muscular atrophy (SMA) and other neurological disorders. The data collected should describe the clinical practice, meaning real-world evidence and patient-reported outcomes.
Conditions
Sponsors & Collaborators
-
Charite University, Berlin, Germany
collaborator OTHER -
Ambulanzpartner Soziotechnologie APST GmbH
lead INDUSTRY
Principal Investigators
-
Thomas Meyer, Prof. Dr. · Ambulanzpartner Soziotechnologie APST GmbH
Eligibility
- Min Age
- 18 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2015-10-30
- Primary Completion
- 2028-12-31
- Completion
- 2029-06-30
Countries
- Germany
Study Locations
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