Registry Study on Cystic Fibrosis in Chinese Children
NCT02753374 · Status: NOT_YET_RECRUITING · Type: OBSERVATIONAL · Enrollment: 100
Last updated 2016-04-28
Summary
This study is a multicenter, prospective cohort study of patients diagnosed with cystic fibrosis, the clinical information of recruited patients, including clinical manifestations, lung function, chest imaging, quality of life and other indicators, will be followed for 10 years.
Conditions
Sponsors & Collaborators
-
Shengjing Hospital
collaborator OTHER -
Capital Institute of Pediatrics, China
collaborator OTHER -
Shanghai Children's Medical Center
collaborator OTHER -
Shenzhen Children's Hospital
collaborator OTHER_GOV -
The First Affiliated Hospital of Xiamen University
collaborator OTHER -
First Affiliated Hospital of Guangxi Medical University
collaborator OTHER -
Beijing Children's Hospital
lead OTHER
Principal Investigators
-
Kunling Shen, MD, PhD · Beijing Children's Hospital of Capital Medical University, China, China National Clinical Research Center for Respiratory Diseases
-
Baoping Xu, MD, PhD · Beijing Children's Hospital of Capital Medical University, China, China National Clinical Research Center for Respiratory Diseases
Eligibility
- Max Age
- 18 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2016-05-31
- Primary Completion
- 2030-05-31
- Completion
- 2030-07-31
More Related Trials
-
MRI in Cystic Fibrosis and Primary Ciliary Dyskinesia
NCT03279965 ·Status: UNKNOWN
-
Functional Analysis by Dynamic Imaging of the Respiratory Epithelium in Infants With Cystic Fibrosis
NCT01605565 ·Status: COMPLETED ·Phase: NA
-
Comparison Between Ultra-low-dose Computed Tomography and Lung MRI in Cystic Fibrosis
NCT04644471 ·Status: COMPLETED ·Phase: NA
-
Controlled Ventilation CT in CF Infants
NCT01200888 ·Status: TERMINATED
-
Investigation of Relationship Between Vascular Functions, Exercise Capacity, and Respiratory Functions in CF
NCT04259983 ·Status: COMPLETED
-
MR Imaging of Lung in the Follow-up Assessment of Cystic Fibrosis
NCT03357562 ·Status: COMPLETED ·Phase: NA
-
Magnetic Resonance Imaging (MRI) for Early Diagnosis of Cystic Fibrosis (CF)
NCT00760071 ·Status: COMPLETED
-
Breath Analysis in in Adults With Cystic Fibrosis (CF)
NCT02209571 ·Status: COMPLETED ·Phase: NA
-
Tissue Collection From People With Cystic Fibrosis
NCT00015756 ·Status: COMPLETED
-
Quantitation and Spatial Registration of Airways Dysfunction With Dynamic 19F MRI in Cystic Fibrosis
NCT06057714 ·Status: RECRUITING
-
FDG-PET Imaging in Young Cystic Fibrosis Patients
NCT00846053 ·Status: COMPLETED ·Phase: NA
-
Assessment of CFTR-Modulator Treatment in Cystic Fibrosis Lung Disease Using Novel Structural and Functional MRI
NCT04391322 ·Status: ACTIVE_NOT_RECRUITING
-
Using MRI to Observe Lung Changes in Infants With CF Compared to Infants Without CF
NCT01832519 ·Status: COMPLETED
-
Cystic Fibrosis Related Bone Disease: the Role of CFTR
NCT01549314 ·Status: COMPLETED
-
Microbiota of the Respiratory Flora in Children With Cystic Fibrosis During the First Year of Life
NCT00977158 ·Status: WITHDRAWN
-
Combating Diagnostic Wandering and Impasse for Cystic Fibrosis
NCT05654480 ·Status: UNKNOWN
-
Respiratory Muscle Training in CF Patients
NCT03190031 ·Status: COMPLETED ·Phase: NA
-
Natural History Study of Exocrine Pancreatic Function in Infants With Cystic Fibrosis (CF)
NCT06506773 ·Status: COMPLETED
-
Evaluation of Lung T1-MRI in Pediatric Cystic Fibrosis Patients
NCT04994301 ·Status: COMPLETED
-
Bronchial Inflammation of Small Airways in Patients With Cystic Fibrosis
NCT01479166 ·Status: COMPLETED
-
Tracking CF Lung Disease Through the Early Years: Utility of the LCI
NCT03138772 ·Status: COMPLETED
-
Microbial Community Composition and Dynamics in Lungs of Cystic Fibrosis Sibling Pairs
NCT00590330 ·Status: COMPLETED
-
Viral Infections and Airway Microbiome in Young Children With Cystic Fibrosis
NCT06188988 ·Status: ENROLLING_BY_INVITATION
-
Longitudinal Observational Study on the Course of Cystic Fibrosis Lung Disease in Patients Following Newborn Screening
NCT02270476 ·Status: RECRUITING
-
Muscle Endurance in Children With Cystic Fibrosis
NCT06812793 ·Status: COMPLETED