A National Registry on Chinese Patients With Cystic Fibrosis
NCT05289245 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 200
Last updated 2022-03-21
Summary
Cystic fibrosis (CF) is a rare autosomal recessive disease involving multiple organs, especially the lungs and digestive organs. It is most commonly seen in Caucasians. Only a few Chinese CF patients have been described in literature, taking into account the large population of China. The main objectives of this study are to accurately evaluate the prevalence of CF, the status of disease, the diagnosis and treatment, the quality of care, and the health related outcomes in China.
Conditions
- Pulmonary Function
Sponsors & Collaborators
-
Peking Union Medical College Hospital
lead OTHER
Eligibility
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2022-04-01
- Primary Completion
- 2032-10-01
- Completion
- 2032-10-01
Countries
- China
Study Locations
More Related Trials
-
Asthma With Hypersecretion-associated Gene for Cystic Fibrosis
NCT02558127 ·Status: COMPLETED
-
Cystic Fibrosis and Frailtyh What's in Common?
NCT06020547 ·Status: COMPLETED
-
Investigation of Relationship Between Vascular Functions, Exercise Capacity, and Respiratory Functions in CF
NCT04259983 ·Status: COMPLETED
-
Assessment of Cognitive Function and Exercise Capacity in Cystic Fibrosis
NCT06175182 ·Status: COMPLETED
-
Biomarkers of Injury and Destruction in the Cystic Fibrosis Lung
NCT01805713 ·Status: COMPLETED
-
DNA Methylation and Lung Disease in Cystic Fibrosis
NCT02884622 ·Status: COMPLETED ·Phase: NA
-
Pulmonary Vascular Disease in CF
NCT04549077 ·Status: ACTIVE_NOT_RECRUITING
-
Diagnosis and Treatment of Patients With Cystic Fibrosis
NCT00001223 ·Status: TERMINATED
-
Early Intervention in Pulmonary Exacerbation in Cystic Fibrosis
NCT00850551 ·Status: COMPLETED ·Phase: NA
-
Connexin Genotypes in Cystic Fibrosis
NCT04242420 ·Status: UNKNOWN ·Phase: NA
-
Evaluating Sensations of Breathlessness in Patients With Cystic Fibrosis
NCT01799642 ·Status: COMPLETED
-
Needs in Education for Pulmonary or Cardiopulmonary Transplanted Cystic Fibrosis Patients
NCT01285895 ·Status: COMPLETED
-
Covid-19 Antibody Responses in Cystic Fibrosis
NCT05012306 ·Status: ACTIVE_NOT_RECRUITING
-
COVID-19 Antibody Responses In Cystic Fibrosis
NCT05158829 ·Status: UNKNOWN
-
Cough Efficiency in Cystic Fibrosis
NCT01636219 ·Status: COMPLETED
-
Development a Core Set for Adults With Cystic Fibrosis Based on the ICF
NCT06128499 ·Status: COMPLETED
-
Tissue Collection From People With Cystic Fibrosis
NCT00015756 ·Status: COMPLETED
-
Cardiopulmonary Fitness in Children With Cystic Fibrosis Compared to Healthy Children
NCT06242951 ·Status: COMPLETED
-
Feasibility of Home-based Exercise Program for Adults With Cystic Fibrosis
NCT05239611 ·Status: COMPLETED ·Phase: PHASE2
-
COVID-19 Antibody Responses in Cystic Fibrosis
NCT05052294 ·Status: ACTIVE_NOT_RECRUITING
-
Longitudinal Analysis of Respiratory and Intestinal Microbiome in Cystic Fibrosis
NCT03335202 ·Status: UNKNOWN
-
MRI in Cystic Fibrosis and Primary Ciliary Dyskinesia
NCT03279965 ·Status: UNKNOWN
-
Cystic Fibrosis Related Bone Disease: the Role of CFTR
NCT01549314 ·Status: COMPLETED
-
Bone Health of People With Cystic Fibrosis
NCT00008762 ·Status: COMPLETED
-
Multicenter Study of Patient-reported Gastrointestinal Symptoms in People With Cystic Fibrosis
NCT03801993 ·Status: COMPLETED