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Medical Record Review of Hypohidrotic Ectodermal Dysplasia Clinical Phenotype

NCT01398397 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 11

Last updated 2012-06-28

No results posted yet for this study

Summary

This study is being done to collect information about people who have or may have Hypohidrotic Ectodermal Dysplasia (HED) or X-linked Hypohidrotic Ectodermal Dysplasia (XLHED). This study will allow Edimer Pharmaceuticals to know more about HED/XLHED so that hopefully the investigators can develop a drug to treat this condition. In this study Edimer will retrospectively review and abstract (summarize) medical records of people that have or may have HED/XLHED in order to further understand the natural history and disease characteristics.

Conditions

  • Hypohidrotic Ectodermal Dysplasia
  • X-Linked Hypohidrotic Ectodermal Dysplasia

Sponsors & Collaborators

  • National Foundation of Ectodermal Dysplasia

    collaborator UNKNOWN

  • Edimer Pharmaceuticals

    lead INDUSTRY

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2011-04-30

Countries

  • United States

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT01398397 on ClinicalTrials.gov