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X-Linked Hypohidrotic Ectodermal Dysplasia (XLHED) Carrier Outlook Toward Reproduction Survey

NCT01398813 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 500

Last updated 2013-07-09

No results posted yet for this study

Summary

In this survey of X-Lined Hypohidrotic Ectodermal Dysplasia (XLHED) carrier females, Edimer proposes to review responses to an XLHED Carrier Outlook toward Reproduction Survey in order to understand attitudes toward reproduction, potential treatments and genetic testing in order to improve the understanding of the decisions that XLHED carrier females make regarding their reproductive future.

Conditions

  • Hypohidrotic Ectodermal Dysplasia
  • X-Linked Hypohidrotic Ectodermal Dysplasia

Sponsors & Collaborators

  • Edimer Pharmaceuticals

    lead INDUSTRY

Principal Investigators

  • Carrie Milliard, CGC · Maine Medical Partners Pediatric Specialty Care

Eligibility

Min Age
18 Years
Sex
FEMALE
Healthy Volunteers
No

Timeline & Regulatory

Start
2011-07-31
Primary Completion
2013-07-31
Completion
2013-07-31

Countries

  • United States

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT01398813 on ClinicalTrials.gov