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Neurofibromatosis Type 1 (NF1) and Tibial Dysplasia

NCT00303368 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 395

Last updated 2019-02-25

No results posted yet for this study

Summary

The study is a multicenter four-year outcome study of the natural history of tibial dysplasia in patients with NF1 and selected patients without NF1. We will obtain information on the natural history, burden, functional and health status, health-related quality of life, and surgical interventions/outcomes of tibial dysplasia. The project will also establish a Core Facility (NOCF) for tissue samples for future studies.

Conditions

  • Neurofibromatosis Type 1
  • Tibial Dysplasia

Sponsors & Collaborators

Principal Investigators

  • John C Carey, MD, MPH · University of Utah, Health Science Center

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2004-03-31
Primary Completion
2014-01-31
Completion
2016-01-31

Countries

  • United States

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT00303368 on ClinicalTrials.gov