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Characteristics and Impacts of X-linked Hypohidrotic Ectodermal Dysplasia (XLHED) in Boys: An Observational International Study

NCT07096206 · Status: ACTIVE_NOT_RECRUITING · Type: OBSERVATIONAL · Enrollment: 27

Last updated 2025-07-31

No results posted yet for this study

Summary

This is an observational, multicentre, international study over a 2-year follow-up period.

The aim of this study is to understand how XLHED affects the lives of young male patients and their families over time. By studying the natural course of the disease and its impact, the study could improve the understanding of the challenges faced by these patients and their families.

Conditions

  • X-Linked Hypohidrotic Ectodermal Dysplasia (XLHED)

Sponsors & Collaborators

  • Pierre Fabre Medicament

    lead INDUSTRY

Principal Investigators

  • Marlène Guiraud · Pierre Fabre Médicament

Eligibility

Min Age
0 Years
Max Age
11 Years
Sex
MALE
Healthy Volunteers
No

Timeline & Regulatory

Start
2023-07-19
Primary Completion
2026-11-19
Completion
2026-11-19

Countries

  • France
  • Germany

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT07096206 on ClinicalTrials.gov