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The Burden of Access in Duchenne Muscular Dystrophy in the US

NCT03951675 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 57

Last updated 2020-08-06

No results posted yet for this study

Summary

This study is being conducted to determine if DMD patients / families and healthcare providers experience burdens related to access, and if so, to identify them, and to determine life impacts to the patient, if any, of these burdens. Data from healthcare providers will be collected by an online survey and from patients/families by one on one telephone interview.

Conditions

Sponsors & Collaborators

  • Engage Health Inc.

    collaborator INDUSTRY

  • University of Florida

    lead OTHER

Principal Investigators

  • Kara Godwin, MSN,APRN · University of Florida

Eligibility

Min Age
18 Years
Max Age
99 Years
Sex
ALL
Healthy Volunteers
Yes

Timeline & Regulatory

Start
2019-06-18
Primary Completion
2020-05-28
Completion
2020-05-28

Countries

  • United States

Study Locations

More Related Trials

Entities

Diseases

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT03951675 on ClinicalTrials.gov