Duchenne Muscular Dystrophy < 18y in Norway: Genotype/Phenotype, Growth, Puberty, Bone Health and Quality of Life.
NCT01963897 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 73
Last updated 2017-09-25
Summary
The study will give a consent based epidemiological overview of Norwegian patients with Duchenne muscular dystrophy younger than 18 years of age. Genotype of the population will be described. Longitudinal development of growth, bone health, and , when applicable, puberty over a two year period will be studied. Questionnaires regarding quality of life will also be an important part of the study.
Conditions
Sponsors & Collaborators
-
The Research Council of Norway
collaborator OTHER -
University Hospital of North Norway
collaborator OTHER -
Oslo University Hospital
lead OTHER
Principal Investigators
-
Magnhild Rasmussen, Dr.med. · Oslo University Hospital
Eligibility
- Max Age
- 18 Years
- Sex
- MALE
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2013-08-31
- Primary Completion
- 2017-06-30
- Completion
- 2017-06-30
Countries
- Norway
Study Locations
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