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Natural History Study of Oculopharyngeal Muscular Dystrophy

NCT03161847 · Status: WITHDRAWN · Type: OBSERVATIONAL

Last updated 2022-05-27

No results posted yet for this study

Summary

The objective of this study is to test a set of clinical outcome measures longitudinally in a cohort of OPMD patients to identify ones that show quantifiable change over time as the disease progresses. The investigators' goal is to delineate the natural history of OPMD.

Conditions

  • Oculopharyngeal Muscular Dystrophy

Interventions

OTHER

Non-interventional study

Non-interventional study

Sponsors & Collaborators

  • University of Florida

    collaborator OTHER

  • University of New Mexico

    lead OTHER

Principal Investigators

  • Sarah Youssof, MD, MS · New Mexico Neuromuscular Center

Eligibility

Min Age
18 Years
Max Age
99 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2016-12-12
Primary Completion
2018-07-18
Completion
2018-07-18

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT03161847 on ClinicalTrials.gov