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Emotions in the Communication and Relationship Styles of Parents With Hemophilic Children.

NCT05754619 · Status: UNKNOWN · Type: OBSERVATIONAL · Enrollment: 10

Last updated 2023-03-06

No results posted yet for this study

Summary

Severe hemophilia is a rare, inherited, X-linked disorder. Currently, standard therapy involves ev infusion of drugs from a very young age.

The diagnosis of hemophilia is a traumatic event for the parents, even before the unborn child. The management of the hemophilia patient involves the whole family. Also in relation to its heredity.Focus on the ways in which parents of children with hemophilia manage their emotional experience.

Conditions

Sponsors & Collaborators

  • Fondazione Policlinico Universitario Agostino Gemelli IRCCS

    lead OTHER

Principal Investigators

  • Raimondo De Cristofaro, MD · Fondazione Policlinico Universitario A.Gemelli IRCCS Rome

Eligibility

Min Age
10 Years
Max Age
18 Years
Sex
ALL
Healthy Volunteers
Yes

Timeline & Regulatory

Start
2022-10-14
Primary Completion
2023-05-14
Completion
2023-05-14

Countries

  • Italy

Study Locations

More Related Trials

Entities

Diseases

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT05754619 on ClinicalTrials.gov