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Non Substitutive Strategies to Improve Haemophilia Care in Developing Countries. Experience in Ivory Coast.

NCT03054662 · Status: COMPLETED · Phase: NA · Type: INTERVENTIONAL · Enrollment: 142

Last updated 2019-09-27

No results posted yet for this study

Summary

This study aims to make an inventory of the condition and care of patients with haemophilia and carriers for haemophilia in Ivory Coast and to promote the use non substitutive strategies that are not costly and available in Ivory Coast, to improve the management of haemophilia in this country. The purpose of this project is to evaluate the extent to which the active promotion of these various measures will improve the care of patients with haemophilia and carriers in Ivory Coast.

Conditions

  • Haemophilia
  • Developing Countries

Interventions

OTHER

Education

Education of patients and caregivers about haemophilia and carriers of haemophilia.

DIAGNOSTIC_TEST

Improve biological diagnosis and follow-up of haemophilia

train the laboratory to the diagnosis ans follow-up un haemophilia

DRUG

Implement haemostatic non substitutive care of haemophilia

Implement the use of DDAVP and antifibrinolytics in patients with haemophilia and symptomatic carriers

OTHER

Implement non haemostatic care of haemophilia

Implement regular physiotherapy, develop dental care, promote the regular use of pain killers

Sponsors & Collaborators

  • World Federation of Hemophilia

    collaborator OTHER

  • Cliniques universitaires Saint-Luc- Université Catholique de Louvain

    lead OTHER

Principal Investigators

  • Catherine M Lambert, MD · Cliniques universitaires Saint-Luc- Université Catholique de Louvain

Study Design

Allocation
NON_RANDOMIZED
Purpose
OTHER
Masking
NONE
Model
SINGLE_GROUP

Eligibility

Min Age
12 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2017-01-16
Primary Completion
2018-12-31
Completion
2019-09-17

Countries

  • Côte d’Ivoire

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT03054662 on ClinicalTrials.gov