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Learning to Live With Non-severe Haemophilia

NCT05314751 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 165

Last updated 2024-03-13

No results posted yet for this study

Summary

While the burden of standard treatment may be reduced through the use of gene therapy, converting those with severe haemophilia to a mild or moderate phenotype, the long-term sequelae of previous joint bleeds and associated limitations imposed on those with severe haemophilia may not translate to lessen the biomedical burden of living with a history of severe haemophilia.

We wish to explore these issues further in the Learning to Live study. The study will also seek to identify the ongoing support needs of those who transition to a milder bleeding phenotype.

Conditions

Interventions

BEHAVIORAL

Questionnaire and interview

An online survey and an in-depth interview.

Sponsors & Collaborators

Eligibility

Min Age
16 Years
Max Age
100 Years
Sex
MALE
Healthy Volunteers
No

Timeline & Regulatory

Start
2022-12-21
Primary Completion
2023-09-29
Completion
2023-09-29

Countries

  • United Kingdom

Study Locations

More Related Trials

Entities

Diseases
Companies

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT05314751 on ClinicalTrials.gov