German Pediatric Hemophilia Research Database
NCT02912143 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 800
Last updated 2023-03-08
Summary
The German Pediatric Hemophilia Research Database will collect data on the prophylactic and therapeutic use of factor concentrates, complications, outcome measures (joint scores, QoL) and living circumstances in newly diagnosed children with hemophilia.
Conditions
- Hemophilia A
- Hemophilia B
- Children
- Drug Specific Antibodies
Interventions
- OTHER
-
documentation only
Sponsors & Collaborators
-
Society for Thrombosis and Haemostasis Research (Germany)
collaborator OTHER -
Goethe University
lead OTHER
Principal Investigators
-
Christoph Königs, PhD · Goethe University
Eligibility
- Max Age
- 18 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2017-01-01
- Primary Completion
- 2027-12-31
- Completion
- 2028-12-31
Countries
- Germany
Study Locations
More Related Trials
-
ATHNdataset Registry
NCT06820515 ·Status: RECRUITING
-
A Survey on the Success of Inhibitor Elimination Using Individualized Concentrate Selection and Controlled ITI
NCT02207894 ·Status: RECRUITING
-
Register of Patients With haEmophilia A tReated With Afstyla®
NCT04675541 ·Status: COMPLETED
-
TFPI Levels in Haemophilia A and B Patients
NCT04570696 ·Status: UNKNOWN
-
Data Registry in Chinese Hemophilia A and B Patients
NCT07101224 ·Status: COMPLETED
-
Global Hemostatic Methods in Hemophilia and Von Willebrand's Disease
NCT02061033 ·Status: UNKNOWN
-
Combining Registry Data in Haemophilia: TARGET H
NCT03264014 ·Status: COMPLETED
-
Low VW Activity in Adolescent HMB
NCT02933411 ·Status: ACTIVE_NOT_RECRUITING
-
Clinical and Health-related Outcome of rFVIIIFc Prophylaxis
NCT04583930 ·Status: UNKNOWN
-
Observational Study on Safety of Room Temperature Stable NovoSeven® in Patients With Haemophilia A or B
NCT01220141 ·Status: COMPLETED
-
Females With Severe or Moderate Hemophilia A or B: an International Multi-center Study
NCT00936312 ·Status: COMPLETED
-
Swiss Hemophilia Registry
NCT02512250 ·Status: RECRUITING
-
Emotions in the Communication and Relationship Styles of Parents With Hemophilic Children.
NCT05754619 ·Status: UNKNOWN
-
Outcomes of Prophylaxis and On-demand Treatment for Severe Hemophiliacs and Collection of Baseline Data in Hemophiliacs in Taiwan
NCT02908243 ·Status: UNKNOWN
-
Tissue Factor Pathway Inhibitor (TFPI) and Haemorrhagic Manifestations in Haemophilia A and B Patients
NCT02540187 ·Status: COMPLETED
-
Use of a TGA and TEM in the Assessment of the Efficacy of Treatment With APCC or rFVIIa
NCT01856751 ·Status: UNKNOWN
-
Key Aspects of Medical Practice in Patients With Haemophilia A
NCT02996942 ·Status: WITHDRAWN
-
Epidemiology and Immunology of Hemophilia A Inhibitors
NCT00005518 ·Status: COMPLETED
-
2-cohort Study of Adult Patients With Severe Hemophilia A in Greece
NCT02319070 ·Status: COMPLETED
-
Observational Study on the Efficacy and Safety of NovoSeven® During "Real-life" Usage in Germany
NCT00697320 ·Status: COMPLETED
-
Patient Functioning and Well-being, Economic, and Clinical Impact of Hemophilia A and Its Treatment
NCT02396862 ·Status: COMPLETED
-
The World Federation of Hemophilia Gene Therapy Registry
NCT04883710 ·Status: NOT_YET_RECRUITING
-
Retrospective Study in Chinese Pediatric Hemophilia A Patients With rFⅧ Contained Regular Prophylaxis
NCT02263066 ·Status: COMPLETED
-
Global Haemostatic Methods Following Administration of Bypassing Agents to Patients With Haemophilia With Inhibitors
NCT02453542 ·Status: RECRUITING
-
Platelet Function in Patients With Hemophilia A
NCT02093065 ·Status: COMPLETED