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Assessment of the State of Health, Quality of Life and Expectations of Patients With Hereditary Angioedema

NCT04888650 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 314

Last updated 2023-05-10

No results posted yet for this study

Summary

8 years after the establishment of the therapeutic education program and 14 years after the creation of the National Reference Center for Angioedemas (CREAK), it is necessary to make an inventory in 2021 on the disease experienced by the patient with an assessment the needs and expectations of HAE patients. This assessment would make it possible to see the evolution of these needs and to adjust the price for the overall cost of children and adults in France. It may also allow a comparison of the requests expressed during a similar survey in another French-speaking region such as Quebec.

Main objective is to know the needs and the current satisfaction of the needs, with regard to the disease and the treatment of the targeted patients of hereditary angioedema (HAE)

Conditions

Interventions

OTHER

questionnaire

electronic questionnaire

Sponsors & Collaborators

  • University Hospital, Grenoble

    lead OTHER

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2021-05-03
Primary Completion
2022-01-02
Completion
2022-01-02

Countries

  • France

Study Locations

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Entities

Diseases

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT04888650 on ClinicalTrials.gov