MedTrace Logo

Quality of Life in Middle-aged and Older Patients With Congenital Ichthyosis

NCT05610306 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 20

Last updated 2025-10-01

No results posted yet for this study

Summary

The goal of this observational study is to learn about the quality of life in patients with congenital ichthyosis.

The main question it aims to answer are:

• What is the impact of ichthyosis on the biological-psychological-social quality of life in adult and elderly patients with inherited ichthyosis ?

Participants will take part in individual interviews in which the investigators will explore if and how ichthyosis impacts their quality of life. Examples of such questions are whether participants experience pain, experience struggles in their personal or professional lives, with sports activities or if participants experience a financial burden.

Conditions

  • Congenital Ichthyosis

Interventions

OTHER

Qualitative interview

Qualitative interviews to gain insight into the impact of ichthyosis on the biological, psychological, and social quality of life in adult and elderly patients.

Sponsors & Collaborators

  • Maastricht University Medical Center

    lead OTHER

Principal Investigators

  • Antoni H Gostynski, MD, PhD · MAASTRICHT UMC+

Eligibility

Min Age
30 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2022-11-14
Primary Completion
2023-07-31
Completion
2023-07-31

Countries

  • Netherlands

Study Locations

More Related Trials

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT05610306 on ClinicalTrials.gov