UPenn Observational Research Repository on Neurodegenerative Disease
NCT04715399 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 1000
Last updated 2026-01-22
Summary
The aim of this study is to create a repository of both cross-sectional and longitudinal data, including cognitive, linguistic, imaging and biofluid biological specimens, for neurodegenerative disease research and treatment.
Conditions
- Frontotemporal Degeneration(FTD)
- Primary Progressive Aphasia(PPA)
- Familial Frontotemporal Lobar Degeneration (fFTLD)
- Amyotrophic Lateral Sclerosis(ALS)
- Lewy Body Disease(LBD)
- Progressive Supranuclear Palsy(PSP)
- Corticobasal Syndrome(CBS)
- Posterior Cortical Atrophy(PCA)
- Alzheimer's Disease(AD)
Interventions
- OTHER
-
No intervention
No intervention
Sponsors & Collaborators
-
National Institutes of Health (NIH)
collaborator NIH -
United States Department of Defense
collaborator FED -
National Institute on Aging (NIA)
collaborator NIH - collaborator OTHER
- lead OTHER
Principal Investigators
-
David Irwin, MD · University of Pennsylvania
Eligibility
- Min Age
- 18 Years
- Sex
- ALL
- Healthy Volunteers
- Yes
Timeline & Regulatory
- Start
- 2020-05-29
- Primary Completion
- 2070-05-30
- Completion
- 2070-05-30
Countries
- United States
Study Locations
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