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Experiences of Disclosure in Adolescents With Coeliac Disease

NCT04240340 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 7

Last updated 2020-10-27

No results posted yet for this study

Summary

Being diagnosed with coeliac disease means that individuals can no longer consume things containing gluten, such as bread or cake, or they can become very ill. This can make situations involving food challenging, such as social situations or lunch at school. The investigators know that being diagnosed with coeliac disease as a teenager can be particularly upsetting and can lead to problems such as anxiety or low mood. Research suggests that when young people are worried about the impact of their condition on their life, they can find it challenging to tell their doctor or ask for support.

The investigators would like to understand the experiences of young people with coeliac disease who attend the Paediatric Gastroenterology service at a local children's hospital. The investigators are particularly interested in the reasons why young people either feel able or unable to tell their doctor that they are experiencing difficulties relating to their wellbeing during their appointments, in order to improve support for young people.

This study aims to recruit young people between the ages of 11 and 16, who are attending secondary school, to ask them about the things that make it easier or more difficult to share any concerns about their wellbeing with their doctor.

Conditions

  • Celiac Disease in Children
  • Celiac Disease
  • Celiac
  • Disclosure
  • Stigma, Social
  • Emotional Problem
  • Mental Health Wellness 1

Interventions

OTHER

semi-structured interview

Semi-structured, face-to-face interviews will be carried out with participants.

Sponsors & Collaborators

  • University of Oxford

    lead OTHER

Principal Investigators

  • Miranda Wheeler · University of Oxford

Eligibility

Min Age
11 Years
Max Age
16 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2020-03-01
Primary Completion
2020-10-17
Completion
2020-10-17

Countries

  • United Kingdom

Study Locations

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Entities

Diseases

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT04240340 on ClinicalTrials.gov