Stigma, Self-management, & Quality of Life in SCD
NCT03488264 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 102
Last updated 2019-04-11
Summary
Many individuals with sickle cell disease experience both a poor quality of life and stigma. Individuals with SCD often experience high levels of stigma which can be a barrier to good self-management and hinder quality of life. The purpose of this research is to improve understanding of the relationships between stigma, self-management, and quality of life in SCD in the United States and Jamaica. The findings from this project will contribute to the development of a tool to measure self-management strategies and will also guide the development of interventions to improve SCD self-management.
Conditions
- Sickle Cell Disease
- Quality of Life
- Stigma, Social
- Disease Self-Management
Sponsors & Collaborators
- lead OTHER
Principal Investigators
-
Paula Tanabe, PhD · Duke University
Eligibility
- Min Age
- 18 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2018-02-13
- Primary Completion
- 2018-10-27
- Completion
- 2018-10-27
Countries
- United States
- Jamaica
Study Locations
More Related Trials
-
Improving Emergency Department Management of Adults With Sickle Cell Disease
NCT01603160 ·Status: COMPLETED
-
A Rehabilitation Program in Children With Sickle Cell Disease and Cognitive Deficits: a Pilot Study
NCT00895154 ·Status: COMPLETED ·Phase: NA
-
Cooperative Study of The Clinical Course of Sickle Cell Disease
NCT00005277 ·Status: COMPLETED
-
Neurovascular Determinants of Cognitive Function in Adults With Sickle Cell Disease
NCT02946905 ·Status: COMPLETED
-
Parent Educational Program for Children With Sickle Cell Disease
NCT00860782 ·Status: COMPLETED ·Phase: NA
-
Community Health Workers and mHealth for Sickle Cell Disease Care
NCT03648710 ·Status: COMPLETED ·Phase: NA
-
Quality of Life of Children With Sickle Cell Disease Who Are Getting Chronic Transfusions With a Lifeport
NCT00246077 ·Status: COMPLETED
-
School Readiness Intervention for Preschool Children With Sickle Cell Disease
NCT06367192 ·Status: RECRUITING ·Phase: NA
-
Sickle Cell Disease, Neurocognitive Disorders, Social Participation
NCT04793854 ·Status: COMPLETED
-
Families Taking Control (FTC): Family-based Problem-solving Intervention for Children With Sickle Cell Disease
NCT02273310 ·Status: COMPLETED ·Phase: NA
-
Sickle Cell Disease (SCD) Decision Aid
NCT03224429 ·Status: COMPLETED ·Phase: NA
-
Preliminary Feasibility and Efficacy of Behavioral Intervention to Reduce Pain-Related Disability in Pediatric SCD
NCT04388241 ·Status: COMPLETED ·Phase: NA
-
A Socio-ecological Approach for Improving Self-management in Adolescents With SCD
NCT06290401 ·Status: RECRUITING ·Phase: NA
-
Effectiveness of Laying-on-of-hands for Sickle Cell Disease
NCT01518218 ·Status: COMPLETED ·Phase: PHASE2
-
Patient Centered Comprehensive Medication Adherence Management System in Patients With Sickle Cell Disease
NCT02371720 ·Status: COMPLETED ·Phase: NA
-
Qualitative Survey of Potential Exercise Activity in Adults With Sickle Cell Anemia (SCA)
NCT04181944 ·Status: COMPLETED ·Phase: NA
-
Predictors and Outcomes in Patients With Sickle Cell Disease
NCT03431935 ·Status: COMPLETED
-
Improving Self-Management in Adolescents With Sickle Cell Disease
NCT02851615 ·Status: COMPLETED ·Phase: NA
-
FOCUS for Pediatric Sickle Cell Disease and Cancer
NCT04075877 ·Status: UNKNOWN ·Phase: NA
-
Links Between Cognitive Functions and Clinical, Biological and Neuroradiological Outcomes in Adults With Sickle Cell Disease.
NCT04244240 ·Status: COMPLETED
-
Sickle Cell Disease and the Genomic and Gene Therapy Needs of Stakeholders
NCT04416178 ·Status: RECRUITING
-
Building Adaptive Coping and Knowledge to Improve Daily Life
NCT04602728 ·Status: COMPLETED ·Phase: NA
-
Motivations, Expectations, and Decision-making of Sickle Cell Patients in Clinical Research
NCT03709303 ·Status: COMPLETED
-
Curative Versus Disease-Modifying Therapies in Children With Severe Sickle Cell Disease
NCT01369160 ·Status: COMPLETED
-
Pilot Evaluation of a Motivational Interviewing Intervention Targeting Adherence Behaviors in Youth With Sickle Cell Disease
NCT04877054 ·Status: COMPLETED ·Phase: NA