Disseminating NIH Evidence Based Sickle Cell Recommendations in North Carolina
NCT03253211 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 4392
Last updated 2020-03-27
Summary
This project will improve the efficiency and quality of healthcare for persons with sickle cell disease, an under-served and at risk population by implementing a co-management model of care. Many patients with sickle cell disease (SCD) receive care primarily from specialty physicians and emergency departments (ED), thus resulting in a lack of primary care and a high number of ED visits and hospitalizations. The goal is to improve PCP and SCD specialist co-management. The overall purpose of this dissemination project is to evaluate utilization data, as well as patient and provider reported outcomes associated with the dissemination of a toolbox of decision support tools to PCP's and ED providers across NC and SC.
Conditions
Sponsors & Collaborators
-
Agency for Healthcare Research and Quality (AHRQ)
collaborator FED - lead OTHER
Principal Investigators
-
Paula Tanabe, PhD · Duke University
Eligibility
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2018-11-06
- Primary Completion
- 2019-12-15
- Completion
- 2019-12-15
Countries
- United States
Study Locations
More Related Trials
-
Patient Centered Comprehensive Medication Adherence Management System in Patients With Sickle Cell Disease
NCT02371720 ·Status: COMPLETED ·Phase: NA
-
Cooperative Study of The Clinical Course of Sickle Cell Disease
NCT00005277 ·Status: COMPLETED
-
Quantifying the Presence of Lung Disease and Pulmonary Hypertension in Children With Sickle Cell Disease
NCT01895998 ·Status: COMPLETED ·Phase: PHASE1
-
Parent Educational Program for Children With Sickle Cell Disease
NCT00860782 ·Status: COMPLETED ·Phase: NA
-
A Self-Management Intervention for Youth With Sickle Cell Disease and Their Families: Phase I
NCT03069430 ·Status: COMPLETED
-
Predictors of Pain in Sickle Cell Disease
NCT06139510 ·Status: RECRUITING ·Phase: NA
-
Use of a Mobile-based App for SCD Patients
NCT01833702 ·Status: COMPLETED
-
Sickle Cell Disease: A Retrospective Chart Review
NCT01441375 ·Status: COMPLETED
-
Investigation of Selected Patient Groups From The Cooperative Study of Sickle Cell Disease
NCT00005300 ·Status: COMPLETED
-
Kidney Function in Sickle Cell Anemia
NCT03277547 ·Status: ACTIVE_NOT_RECRUITING
-
Carbon Monoxide Levels and Sickle Cell Disease Severity
NCT01547793 ·Status: COMPLETED
-
Blood Sampling for Research Related to Sickle Cell Disease
NCT00542230 ·Status: RECRUITING
-
CHOICES3: Sickle Cell Disease Parenting CHOICES
NCT05292781 ·Status: ACTIVE_NOT_RECRUITING ·Phase: NA
-
Delivering Patient-Facing Evidence-Based Guidelines Through mHealth to Adults With Sickle Cell Disease
NCT06919224 ·Status: RECRUITING ·Phase: NA
-
Prevention of Cerebral Infarction in Sickle Cell Anemia - Comprehensive Sickle Cell Center
NCT00005327 ·Status: COMPLETED
-
Telemedicine for Children With Sickle Cell Disease
NCT05087303 ·Status: ACTIVE_NOT_RECRUITING ·Phase: NA
-
Predictors and Outcomes in Patients With Sickle Cell Disease
NCT03431935 ·Status: COMPLETED
-
Adherence to Hydroxyurea in Children With Sickle Cell Anemia
NCT00672789 ·Status: COMPLETED ·Phase: NA
-
Secondary Pulmonary Hypertension in Adults With Sickle Cell Anemia
NCT00011648 ·Status: COMPLETED
-
Use of Mobile Technology for Intensive Training in Medication Management
NCT02133560 ·Status: COMPLETED ·Phase: NA
-
Preliminary Feasibility and Efficacy of Behavioral Intervention to Reduce Pain-Related Disability in Pediatric SCD
NCT04388241 ·Status: COMPLETED ·Phase: NA
-
A Pilot Study of Chronic Red Blood Cell Transfusion in Sickle Cell Disease-Associated Pulmonary Hypertension
NCT00850369 ·Status: WITHDRAWN ·Phase: PHASE2
-
Implementing an Individualized Pain Plan (IPP) for ED Treatment of VOE's in Sickle Cell Disease
NCT04584528 ·Status: COMPLETED ·Phase: NA
-
Community Health Workers and mHealth for Sickle Cell Disease Care
NCT03648710 ·Status: COMPLETED ·Phase: NA
-
Using Patient-Centered Guidelines in a Technology Platform to Improve Health Care in Adults With Sickle Cell Disease
NCT03629678 ·Status: COMPLETED ·Phase: NA