Journey of Patients With Vasculitis From First Symptom to Diagnosis

Summary

This study seeks to understand the journey that patients eventually are diagnosed with vasculitis experience in the period prior to their formal diagnosis by a healthcare provider. Data elements of interest include average time from the onset of the first symptoms to the time a diagnosis of vasculitis is confirmed. Other aims include identifying factors associated with the time to diagnosis. These factors will be divided into: a) intrinsic factors, or so-called "patient-related factors", such as the type of vasculitis symptoms, patient demographics, socioeconomic status, patients' beliefs regarding the etiology of their symptoms, and other factors, and b) extrinsic factors, or "professional/health system factors", such as healthcare access, referral patterns, testing patterns, and other factors. Understanding such factors can guide future efforts to shorten delays in diagnosis and thereby improve outcomes. All analyses will be done for the population of patients with vasculitis as a whole and by individual types of vasculitis.

Conditions

• Vasculitis
• Systemic Vasculitis
• Behcet's Disease
• CNS Vasculitis
• Cryoglobulinemic Vasculitis
• Eosinophilic Granulomatous Vasculitis
• Temporal Arteritis
• Giant Cell Arteritis
• Granulomatosis With Polyangiitis
• Wegener Granulomatosis
• Henoch Schonlein Purpura
• IgA Vasculitis
• Microscopic Polyangiitis
• Polyarteritis Nodosa
• Takayasu Arteritis
• Urticarial Vasculitis

Interventions

OTHER

Online Questionnaire

The online questionnaire includes questions about factors that impacted a patients diagnosis of vasculitis.

Sponsors & Collaborators

• University of Pennsylvania

  lead OTHER

Principal Investigators

• Antoine Sreih, MD · University of Pennsylvania

• Peter A Merkel, MD, MPH · University of Pennsylvania

Eligibility

Sex

ALL

Healthy Volunteers

No

Timeline & Regulatory

Start

2018-01-11

Primary Completion

2018-05-21

Completion

2018-05-21

Countries

• United States

Study Locations