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Educational Needs of Patients With Systemic Vasculitis

NCT02190929 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 386

Last updated 2014-07-15

No results posted yet for this study

Summary

A cross-sectional study design and online questionnaire was used to assess the informational needs of patients with several different types of systemic vasculitis. Patients were recruited from within the Vasculitis Clinical Research Consortium (VCRC) online Patient Contact Registry1. Survey responses from participants in the VCRC Patient Contact Registry were compared to responses from a similar survey recently administered to patients within a United Kingdom (UK) based vasculitis support group (Vasculitis UK).

Conditions

  • Behcet's Disease
  • Churg-Strauss Syndrome
  • Vasculitis, Central Nervous System
  • Giant Cell Arteritis
  • Wegener Granulomatosis
  • Henoch-Schoenlein Purpura
  • Microscopic Polyangiitis
  • Polyarteritis Nodosa
  • Takayasu's Arteritis

Sponsors & Collaborators

  • Boston University

    collaborator OTHER

  • University of Pennsylvania

    collaborator OTHER

  • Data Management and Coordinating Center (DMCC)

    collaborator OTHER

  • University of South Florida

    lead OTHER

Principal Investigators

  • Richard A Watts, DM · University of East Anglia

  • Janice Mooney, M.Sc. · University of East Anglia

  • Peter C. Grayson, MD · Boston University

  • Peter A. Merkel, MD, MPH · University of Pennsylvania

  • Amanda M. Terry, MA · University of South Florida College of Medicine

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2012-03-31
Primary Completion
2014-02-28
Completion
2014-02-28

Countries

  • United States

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT02190929 on ClinicalTrials.gov