Impact of Vasculitis on Employment and Income

Summary

The purpose of this study is to learn about the impact of vasculitis on employment and income in patients with different systemic vasculitides. All patients enrolled in the Vasculitis Clinical Research Consortium (VCRC) Patient Contact Registry, living in USA or Canada, and followed for more than 1 year since the vasculitis diagnosis will be invited via email to participate in this study, based on an online survey.

Conditions

• Vasculitis
• Systemic Vasculitis
• Behcet's Disease
• CNS Vasculitis
• Cryoglobulinemic Vasculitis
• Eosinophilic Granulomatosis
• Temporal Arteritis
• Wegener Granulomatosis
• Henoch-Schoenlein Purpura
• Microscopic Polyangiitis
• Polyarteritis Nodosa (PAN)
• Takayasu's Arteritis
• Urticarial Vasculitis

Interventions

OTHER

online questionnaire

The online questionnaire includes questions about vasculitis, employment and work status before diagnosis and over the course of the disease, work capacity and the financial impact of vasculitis.

Sponsors & Collaborators

• University of Western Ontario, Canada

  collaborator OTHER

• University of Pennsylvania

  collaborator OTHER

• University of Toronto

  collaborator OTHER

• University of South Florida

  lead OTHER

Principal Investigators

• Christian Pagnoux, MD, MPH, MSc · University of Toronto

• Peter A. Merkel, MD, MPH · University of Pennsylvania

• Lillian Barra, MD, PhD · University of Western Ontario, Canada

Eligibility

Min Age

18 Years

Sex

ALL

Healthy Volunteers

No

Timeline & Regulatory

Start

2015-06-30

Primary Completion

2016-01-31

Completion

2016-01-31

Countries

• United States

Study Locations