Duke Scleroderma Clinic Patient Registry
NCT02851875 · Status: TERMINATED · Type: OBSERVATIONAL · Enrollment: 42
Last updated 2021-01-29
Summary
The purpose of the Duke Scleroderma Registry (DSScR) is to obtain information about scleroderma. This information could be used in future research to increase the understanding of disease mechanisms, treatments, and outcomes. This research may also help develop new therapies, novel measures of disease assessment or identify previously unknown manifestations of the diseases. A prospectively followed cohort is an integral component of future translational and clinical research programs. A registry for scleroderma would allow for information to be gleaned about patients in "real-world situations" in an effort to improve the reality, generalizability and applicability of information gathered.
Conditions
- Scleroderma
- Systemic Sclerosis
Interventions
- OTHER
-
Registry
Sponsors & Collaborators
- lead OTHER
Principal Investigators
-
Ankoor Shah, MD · Duke University
Eligibility
- Min Age
- 18 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2016-04-30
- Primary Completion
- 2018-05-07
- Completion
- 2018-05-07
Countries
- United States
Study Locations
More Related Trials
-
Cohort of Patients With Systemic Sclerosis Within the Framework of the RESO Reference Centre
NCT04265144 ·Status: RECRUITING ·Phase: NA
-
Metabolomic Analysis of Systemic Sclerosis
NCT02298777 ·Status: TERMINATED
-
Studies of Dermatologic Diseases Biospecimen Acquisition Protocol
NCT02471352 ·Status: RECRUITING
-
Scleroderma Registry
NCT00074568 ·Status: COMPLETED
-
Study of Skin Tumors in Tuberous Sclerosis
NCT00001975 ·Status: RECRUITING
-
Microvascular and Fibrosis Imaging Study
NCT01758250 ·Status: COMPLETED
-
Registry for Patients With Erdheim-Chester Disease and Other Histiocytoses
NCT03329274 ·Status: RECRUITING
-
microRNAs in Systemic Scleroderma
NCT04148716 ·Status: COMPLETED
-
Endothelial Microparticles in Systemic Sclerosis Pulmonary Hypertension
NCT02331225 ·Status: COMPLETED
-
An Open-label Extension Trial of HZNP-HZN-825-301 in Adult Participants With Diffuse Cutaneous Systemic Sclerosis (Diffuse Cutaneous SSc)
NCT05626751 ·Status: TERMINATED ·Phase: PHASE2
-
Study of Scaling Disorders and Other Inherited Skin Diseases
NCT00001292 ·Status: COMPLETED
-
Stem Cell Factor, a Potential Biological Marker of Skin Involvement in Systemic Sclerosis?
NCT05482594 ·Status: UNKNOWN
-
Calcinosis in a Single-Center Scleroderma Population
NCT02062125 ·Status: COMPLETED
-
Pathogenic Mechanisms Involved in the Initiation and Progression of Systemic Sclerosis
NCT07015060 ·Status: NOT_YET_RECRUITING ·Phase: NA
-
Treatment and Prevention of Progression of Interstitial Lung Disease in Systemic Sclerosis
NCT01858259 ·Status: UNKNOWN
-
Novel Screening Strategies for Scleroderma PAH
NCT01959815 ·Status: COMPLETED
-
Diffuse Cutaneous Scleroderma (DSSc) SFDI Study
NCT07090226 ·Status: RECRUITING ·Phase: NA
-
Needs Assessment for Individuals and Families Affected by Dyskeratosis Congenita (DC) and Related Telomere Biology Disorders (TBD)
NCT04959188 ·Status: COMPLETED
-
Co-designing Digital Ulcers Opportunities With Patients and Clinicians
NCT05785403 ·Status: UNKNOWN
-
Role of Eosinophil in Fibrogenesis of Systemic Sclerosis
NCT03816189 ·Status: COMPLETED
-
Effectiveness and Safety of SAR156597 in Treating Diffuse Systemic Sclerosis
NCT02921971 ·Status: COMPLETED ·Phase: PHASE2
-
Establishing Fibroblast-Derived Cell Lines From Skin Biopsies of Patients With Immunodeficiency or Immunodysregulation Disorders
NCT00895271 ·Status: ENROLLING_BY_INVITATION
-
NVC Test in Order to Assess Pathological Changes in Family Members of Patient Diagnosed With SSc
NCT02795221 ·Status: UNKNOWN
-
Longitudinal Spatial Frequency Domain Imaging Study
NCT05672992 ·Status: ACTIVE_NOT_RECRUITING ·Phase: NA
-
RESET-SSc: An Open-Label Study to Evaluate the Safety and Efficacy of CABA-201, a CD19-CAR T Cell Therapy, in Subjects With Systemic Sclerosis
NCT06328777 ·Status: RECRUITING ·Phase: PHASE1/PHASE2