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The Canadian National Long QT Syndrome Registry

NCT02425189 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 1051

Last updated 2020-11-16

No results posted yet for this study

Summary

The NLQTS Research Network team aims to build a Canadian collaboration of dedicated investigators that will create a new paradigm in the modern investigation of patients with LQTS and in the description of a new disease modifier.

The project aims to describe the natural history of familial Long QT Syndrome to identify:

1. Low risk patients that do not require protective beta-blocker therapy
2. High-risk patients that require protective beta-blocker therapy and may benefit from a primary prevention ICD. This cohort would contain treated pre-symptomatic individuals effectively protected from harm.

Conditions

  • Long QT Syndrome

Sponsors & Collaborators

  • Andrew Krahn

    lead OTHER

Principal Investigators

  • Andrew D Krahn, MD · University of British Columbia

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2014-11-30
Primary Completion
2020-08-30
Completion
2020-08-30

Countries

  • Canada

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT02425189 on ClinicalTrials.gov