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Hearts in Rhythm Organization (HiRO)National Registry and Bio Bank

NCT04189822 · Status: ENROLLING_BY_INVITATION · Type: OBSERVATIONAL · Enrollment: 10000

Last updated 2022-11-03

No results posted yet for this study

Summary

The Hearts in Rhythm Organization (HiRO) is a national network of Canadian researchers/clinicians, working towards a better understanding of the rare genetic causes of sudden cardiac death (SCD).

Canadian adult and pediatric electrophysiology centres across Canada work together to gather data and bio sample in a national data registry and bio bank hoping to improve the detection and treatment of inherited heart rhythm disorders to prevent sudden death.

Conditions

  • Sudden Cardiac Arrest
  • Sudden Arrhythmic Death Syndrome
  • Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC)
  • Long QT Syndrome (LQTS)
  • Hypertrophic Cardiomyopathy (HCM)
  • Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT)

Sponsors & Collaborators

  • Canadian Institutes of Health Research (CIHR)

    collaborator OTHER_GOV

  • University of British Columbia

    lead OTHER

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2019-08-27
Primary Completion
2025-12-31
Completion
2026-12-31

Countries

  • Canada

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT04189822 on ClinicalTrials.gov