Observational Study to Describe Health-Related Quality of Life and Measure Disease Burden Among Patients With Long QT Syndrome Types (LQTS) 2 and 3
NCT07075445 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 200
Last updated 2025-11-17
Summary
This is a cross-sectional observational study designed to assess the disease burden and quality of life in individuals with LQTS 2 and 3. Each participant will answer each patient-reported outcome questionnaire only once over a 6-month period. The study will enroll up to 200 participants.
Conditions
- Long QT Syndrome Type 3
- Long QT Syndrome 2
Sponsors & Collaborators
-
Thryv Therapeutics, Inc.
lead INDUSTRY
Eligibility
- Min Age
- 18 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2025-10-27
- Primary Completion
- 2026-12-01
- Completion
- 2026-12-01
Countries
- United States
Study Locations
More Related Trials
-
Cardiac ResynchronizatiOn and arrhythmiaS Sensing Via the LEFT Bundle.
NCT05102227 ·Status: UNKNOWN
-
Using Heart Electrical Signals to Study How Well Treatments Prevent Dangerous Heart Rhythms in Active People
NCT07014579 ·Status: NOT_YET_RECRUITING
-
The Canadian National Long QT Syndrome Registry
NCT02425189 ·Status: COMPLETED
-
The Rhytmia System to Determine the Precise Location and Potential Mechanism of Premature Contractions
NCT03460535 ·Status: UNKNOWN
-
Electromechanical Profiling of the Long-QT Syndrome (LQTS)
NCT04074122 ·Status: UNKNOWN
-
Cardiac Rehabilitation of Children and Adolescent With Long QT Syndrome
NCT05964322 ·Status: COMPLETED
-
Exercise in Genetic Cardiovascular Conditions
NCT02549664 ·Status: COMPLETED
-
Study of Cardiac and Paroxysmal Abnormalities in Rett Syndrome
NCT00004773 ·Status: COMPLETED
-
Localization of Anatomical Structures Involved in Nodal Tachycardias by High Density Mapping.
NCT05296954 ·Status: RECRUITING ·Phase: NA
-
China Inherited Ventricular Arrhythmias Registry
NCT03880708 ·Status: RECRUITING
-
Molecular Genetic Screening and Identification of Congenital Arrhythmogenic Diseases
NCT00221832 ·Status: UNKNOWN
-
Exploring Mechanisms and Morphology of QT Interval Prolongation
NCT03291145 ·Status: COMPLETED ·Phase: NA
-
Derivation of Human Induced Pluripotent Stem (iPS) Cells to Heritable Cardiac Arrhythmias
NCT02413450 ·Status: ENROLLING_BY_INVITATION
-
Cardiac Resynchronization Therapy in Congenital Heart Defects
NCT00450684 ·Status: COMPLETED ·Phase: PHASE2/PHASE3
-
Development of an Artificial Intelligence Algorithm to Detect Pathological Repolarization Disorders on the ECG and the Risk of Ventricular Arrhythmias
NCT05829993 ·Status: RECRUITING
-
Electroanatomical Mapping of Patients Undergoing Catheter Ablation Procedures Using Rhythmia Mapping System and Catheter
NCT01642537 ·Status: COMPLETED ·Phase: NA
-
Optimizing Diagnostics Of Arrhythmia Events In Children Using Intelligent Telemetric Solutions
NCT01265771 ·Status: UNKNOWN ·Phase: NA
-
Rhythmic Risk of Type 1 Brugada Syndrome and Pulmonary Infundibulum Mapping
NCT03572881 ·Status: UNKNOWN ·Phase: NA
-
Change of QRS Morphology and Electrophysiological Characteristics During Pacing Within the Interventricular Septum
NCT05557006 ·Status: UNKNOWN
-
Prevalence of Congenital Long QT Syndrome and Acquired QT Prolongation in a Hospital Cohort
NCT03544918 ·Status: COMPLETED
-
A Methodological Open Label Cross-Over Controlled Study To Assess The Effect Of Drugs On Ventricular Repolarization and QT Interval At Fixed Heart Rate Under Autonomic Blockade
NCT00174512 ·Status: COMPLETED ·Phase: PHASE1
-
The Use of the Master Caution System (MCS) for Continuous Monitoring and Detection of Dysrhythmias and Ischemic Events
NCT03001206 ·Status: COMPLETED
-
DNA Analysis From Isolated Cardiomyocytes in the Molecular Diagnosis of Arrhythmogenic Right Ventricular Cardiomyopathy/Dysplasia
NCT03177018 ·Status: COMPLETED ·Phase: NA
-
Left Bundle Branch Area Pacing (LBBAP) Monitoring Assistant: Evaluation of Portable ECG Solution
NCT07254013 ·Status: RECRUITING ·Phase: NA
-
QT Interval in Athletes
NCT05759260 ·Status: COMPLETED