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International Pachyonychia Congenita Research Registry

NCT02321423 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 2000

Last updated 2018-11-21

No results posted yet for this study

Summary

International Pachyonychia Congenita Research Registry (IPCRR) is a patient registry for those suffering from Pachyonychia Congenita (PC). PC is an ultra-rare extremely painful skin disorder that causes painful blisters and callus on feet and sometimes hands, thickened nails, cysts and other features. The IPCRR consists of a questionnaire, patient photos, optional physician notes from telephone consultation to validate questionnaire and free genetic testing.

Conditions

  • Pachyonychia Congenita

Sponsors & Collaborators

  • Pachyonychia Congenita Project

    lead OTHER

Principal Investigators

  • C. David Hansen, MD · Pachyonychia Congenita Project

Eligibility

Sex
ALL
Healthy Volunteers
Yes

Timeline & Regulatory

Start
2004-04-30
Primary Completion
2030-12-31
Completion
2030-12-31

Countries

  • United States

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT02321423 on ClinicalTrials.gov