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National Registry for Ichthyosis and Related Disorders

NCT00074685 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 610

Last updated 2022-09-28

No results posted yet for this study

Summary

The ichthyoses are a family of genetic skin diseases characterized by dry, thickened, scaling skin. Dermatologists estimate that there are over twenty varieties of ichthyosis, with a wide range of severity and associated symptoms. This registry is designed to identify people in the United States with the ichthyoses and other related disorders and to collect information about their skin ailment and how it has affected them. The database is available for review by approved research applicants. The registry is confidential and provides investigators a way to share information about studies and trials with potential participants while maintaining participants' privacy.

Although the Registry is closed to new enrollment, it is still maintained in order to provide information related to understanding the diagnosis, pathophysiology, and treatment of ichthyoses. Support for studies continues and inquiries from investigators are welcomed.

Conditions

  • Darier Disease
  • Hailey-Hailey Disease
  • Hyperkeratosis, Epidermolytic
  • Ichthyosis
  • Ichthyosis, Lamellar
  • Ichthyosis, X-Linked
  • Keratoderma

Sponsors & Collaborators

  • National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)

    lead NIH

Principal Investigators

  • Philip Fleckman, MD · University of Washington

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
1994-09-30
Primary Completion
2004-01-31
Completion
2004-01-31

Countries

  • United States

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT00074685 on ClinicalTrials.gov