Xeroderma Pigmentosum Patient Experiences
NCT01123694 · Status: UNKNOWN · Type: OBSERVATIONAL · Enrollment: 15
Last updated 2010-05-14
Summary
Xeroderma Pigmentosum (XP) is a rare skin condition that causes extreme sensitivity to the sun and an increased incidence of skin cancers. The purpose of this study is to find out more about XP patient experiences and their quality of life.
Conditions
- Xeroderma Pigmentosum
Interventions
- OTHER
-
Survey Study
Survey regarding quality of life
Sponsors & Collaborators
-
Henry Ford Health System
lead OTHER
Principal Investigators
-
Henry W Lim, M.D. · Henry Ford Hospital Department of Dermatology
Eligibility
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2009-07-31
- Primary Completion
- 2010-07-31
- Completion
- 2010-07-31
Countries
- United States
Study Locations
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