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Where Does Hope Fit In? The Relationship Between Hope, Uncertainty, and Coping Efficacy in Mothers of Children With Duchenne/Becker Muscular Dystrophy

NCT02194725 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 228

Last updated 2018-04-05

No results posted yet for this study

Summary

Background:

\- Children with Duchenne/Becker Muscular Dystrophy (DBMD) slowly lose muscle function. They usually die at a young age. Some mothers adapt to the demands of caring for a child with this disease better than others. Studies show that a person s hope may positively affect how they cope and adapt. Researchers want to find out more about this. They want to develop ways to improve caregivers overall wellness.

Objective:

\- To study the relationships between uncertainty, hope, and coping ability in mothers of children with DBMD.

Eligibility:

\- Women in the United States 18 years and older. They must be biological mothers of a living child with DBMD and be able to answer a survey in English.

Design:

* This study is part of a larger study that examines the well-being of mothers with sons who have DBMD.
* Participants will take a questionnaire. The questionnaire can be done on paper or on a computer. It will take 30 45 minutes to complete.
* The questionnaire will include basic demographic questions about the participant and the child. There will also be questions about how the participant copes with the stress and uncertainty of DBMD.
* For most of the questions, participants will rate their feelings on a scale. There will also be four open-ended questions.

Conditions

  • Stress

Sponsors & Collaborators

  • National Human Genome Research Institute (NHGRI)

    lead NIH

Principal Investigators

  • Barbara B Biesecker · National Human Genome Research Institute (NHGRI)

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
Yes

Timeline & Regulatory

Start
2014-07-06
Primary Completion
2015-04-20
Completion
2017-07-07

Countries

  • United States

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT02194725 on ClinicalTrials.gov