MedTrace Logo

Implications for Quality of Life and Quality of Care in Patients With Hereditary Haemochromatosis

NCT01991925 · Status: WITHDRAWN · Type: OBSERVATIONAL

Last updated 2023-03-31

No results posted yet for this study

Summary

Patients with hereditary haemochromatosis will be interviewed/questioned about their Quality of life and the delivered quality of care in the hospital.

Conditions

  • Hereditary Haemochromatosis

Interventions

OTHER

Interviews, questionaires, RAND-modified delphi method round

phase 1: RAND-modified delphi method round with experts in hereditary haemochromatosis phase 2: patient interviews, questionnaires and focus group interviews

Sponsors & Collaborators

  • Universitaire Ziekenhuizen KU Leuven

    lead OTHER

Principal Investigators

  • Annick Vanclooster · UZ Leuven

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2016-04-30
Primary Completion
2017-03-31
Completion
2017-03-31

Countries

  • Belgium

Study Locations

More Related Trials

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT01991925 on ClinicalTrials.gov