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North American Mitochondrial Disease Consortium Patient Registry and Biorepository (NAMDC)

NCT01694940 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 1000

Last updated 2026-02-04

No results posted yet for this study

Summary

The North American Mitochondrial Disease Consortium (NAMDC) maintains a patient contact registry and tissue biorepository for patients with mitochondrial disorders.

Conditions

  • Mitochondrial Disorders
  • Mitochondrial Genetic Disorders
  • Mitochondrial Diseases
  • Disorder of Mitochondrial Respiratory Chain Complexes
  • Deletion and Duplication of Mitochondrial DNA

Sponsors & Collaborators

  • National Institute of Neurological Disorders and Stroke (NINDS)

    collaborator NIH

  • Columbia University

    lead OTHER

Principal Investigators

  • Michio Hirano, MD · Columbia University

Eligibility

Sex
ALL
Healthy Volunteers
Yes

Timeline & Regulatory

Start
2011-01-31
Primary Completion
2026-12-31
Completion
2026-12-31

Countries

  • United States
  • Canada

Study Locations

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Entities

Companies

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT01694940 on ClinicalTrials.gov