MedTrace Logo

A Social Media Approach to Improve Genetic Risk Communication Phase I

NCT01645904 · Status: UNKNOWN · Type: OBSERVATIONAL · Enrollment: 49

Last updated 2019-05-28

No results posted yet for this study

Summary

The goal of this research study is to create an internet-based program designed to improve the communication of health and health history information among family members affected by Lynch syndrome.

Conditions

  • Hereditary Diseases

Interventions

BEHAVIORAL

Audiotaped Focus Group

Participation in a focus group regarding web-based program designed to improve communication of health and health history information among family members affected by Lynch syndrome.

BEHAVIORAL

Demographic Questionnaire

Complete questions about demographics (age, race, marital status) and medical history. This visit should take about 1 hour to complete.

BEHAVIORAL

Audiotaped Interview

Group 2: Patients provide feedback regarding initial version of My Family Garden website. Group 3: Patients provide feedback regarding final version of My Family Garden website.

BEHAVIORAL

WAMMI Inventory

Patients complete Website Analysis and MeasureMent Inventory. This visit should take about 90 minutes to complete.

Sponsors & Collaborators

  • Duncan Family Institute

    collaborator UNKNOWN

  • M.D. Anderson Cancer Center

    lead OTHER

Principal Investigators

  • Susan Peterson, MPH, PhD · M.D. Anderson Cancer Center

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
Yes

Timeline & Regulatory

Start
2013-02-28
Primary Completion
2020-02-29
Completion
2021-02-28

Countries

  • United States

Study Locations

More Related Trials

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT01645904 on ClinicalTrials.gov