Enhancing Information Management for Young Adults After Genetic Cancer Risk Testing
NCT05759143 · Status: RECRUITING · Phase: NA · Type: INTERVENTIONAL · Enrollment: 40
Last updated 2026-04-24
Summary
This research is being done to develop the electronic platform Nest for young adults (ages 18-39) who have had prior cancer genetic testing. The platform will give patients and their clinicians access to continuously updated information about both pathogenic variants and variants of uncertain significance (VUS).
The name of the intervention used in this research study is:
Nest portal (electronic platform for patients and clinicians)
Conditions
- Genetic Predisposition to Disease
- Genetic Predisposition
Interventions
- BEHAVIORAL
-
Nest Platform
Patient- and clinician-facing portal via secure link
Sponsors & Collaborators
-
Nest Genomics
collaborator INDUSTRY - lead OTHER
Principal Investigators
-
Jennifer Mack, MD · Dana-Farber Cancer Institute
Study Design
- Allocation
- NON_RANDOMIZED
- Purpose
- HEALTH_SERVICES_RESEARCH
- Masking
- NONE
- Model
- SINGLE_GROUP
Eligibility
- Min Age
- 18 Years
- Max Age
- 39 Years
- Sex
- ALL
- Healthy Volunteers
- Yes
Timeline & Regulatory
- Start
- 2023-05-01
- Primary Completion
- 2026-06-30
- Completion
- 2026-07-30
Countries
- United States
Study Locations
More Related Trials
-
A Pilot Study of Genetic Testing Uptake Through Enhanced Oncology Nurse-Led Intervention
NCT06436157 ·Status: RECRUITING ·Phase: NA
-
Physicians Survey on Genetic Testing
NCT00341107 ·Status: COMPLETED
-
The Genetic Education for Men Trial: Web-Based Education vs. Standard Care
NCT02957981 ·Status: COMPLETED ·Phase: NA
-
GENetic Education Risk Assessment and TEsting Study
NCT03762590 ·Status: ACTIVE_NOT_RECRUITING ·Phase: NA
-
Testing an Enhanced Digital Delivery Model for Inherited Cancer Genetic Testing in Young Adults With Cancer
NCT07091617 ·Status: RECRUITING ·Phase: NA
-
Beliefs, Attitudes, and Response to Genetic Testing in SarcomaPatients
NCT06875700 ·Status: RECRUITING
-
Single-institution Register of Individuals Undergoing Cancer Genetic Risk Assessment
NCT06800599 ·Status: ENROLLING_BY_INVITATION
-
A Video Intervention to Improve Patient Understanding of Tumor Genomic Testing in Patients With Metastatic Cancer
NCT05215769 ·Status: ACTIVE_NOT_RECRUITING ·Phase: NA
-
eHealth Delivery Alternative for Cancer Genetic Testing for Hereditary Cancer
NCT05427240 ·Status: RECRUITING ·Phase: NA
-
Genetic Testing in Young Adults With Cancer Study
NCT04533555 ·Status: COMPLETED ·Phase: NA
-
Video Education With Result Dependent dIsclosure
NCT05225428 ·Status: RECRUITING ·Phase: NA
-
Utilization of Educational Interventions in Completion of Genetic Testing in Black Patients With High-Risk Prostate Cancer
NCT05958082 ·Status: RECRUITING ·Phase: NA
-
Interest and Impact of Skin Cancer Genetic Testing
NCT02941900 ·Status: COMPLETED
-
Choices About Genetic Testing And Learning Your Risk With Smart Technology
NCT06184867 ·Status: COMPLETED ·Phase: NA
-
An Intervention to Increase Genetic Testing in Families Who May Share a Gene Mutation Related to Cancer Risk and An Intervention to Help Patients and Their Primary Care Providers Stay Up-to-date About Uncertain Genetic Test Results
NCT05420064 ·Status: RECRUITING ·Phase: NA
-
Navigation Interventions to Improve Cascade Genetic Testing Among Relatives of Patients With Hereditary Cancer Syndromes
NCT06927947 ·Status: RECRUITING ·Phase: NA
-
A Social Media Approach to Improve Genetic Risk Communication Phase I
NCT01645904 ·Status: UNKNOWN
-
The Genetic Information and Family Testing (GIFT) Study
NCT05552664 ·Status: COMPLETED ·Phase: NA
-
Web-based Family History Tool
NCT04890327 ·Status: COMPLETED ·Phase: NA
-
Universal Genetic Testing for Cancer Risk Reduction
NCT06926816 ·Status: RECRUITING ·Phase: NA
-
Genetic Testing in African Americans
NCT05591131 ·Status: ACTIVE_NOT_RECRUITING ·Phase: NA
-
Implementing a Randomized Control Trial to Test the Expanded Web-based Decision Aid
NCT06910670 ·Status: RECRUITING ·Phase: NA
-
Provider-Mediated Communication of Genetic Testing Results to At-Risk Relatives of Cancer Patients to Improve Genetic Counseling and Testing Rates, Family HOPE Study
NCT05772130 ·Status: RECRUITING ·Phase: NA
-
Connecting Black Families in Houston, Texas to Hereditary Cancer Genetic Counseling, Genetic Testing, and Cascade Testing by Using a Simple Genetic Risk Screening Tool and Telegenetics
NCT05694559 ·Status: RECRUITING ·Phase: NA
-
Germline Alterations of Tumor Susceptibility Genes in New York Cancer Patients
NCT00579514 ·Status: ACTIVE_NOT_RECRUITING ·Phase: NA