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Predictors of Caregiver Adaptation to Pervasive Developmental Disorders

NCT00496210 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 324

Last updated 2019-11-15

No results posted yet for this study

Summary

This study will explore predictors of how caregivers might adapt to children diagnosed with a pervasive developmental disorder (PDD), including autism, Asperger s syndrome, childhood disintegrative disorder, Rett s disorder or other not specified PDD. PDD presents particular challenges for caregivers because of the communication and socialization challenges of affected children and because of the uncertainty surrounding the cause, prognosis and recurrence risks.

People 18 years of age or older who are the primary caregiver for a child diagnosed with a PDD may be eligible for this study. Participants fill out a survey, either online or in hard copy, that includes information in the following categories:

* How being a caregiver for a child with a PDD has impacted the caregiver.
* How much control the caregiver feels that he or she or others have over certain aspects of their child s PDD.
* What the caregiver thinks caused the child s PDD.
* What coping techniques the caregiver uses in caring for a child with a PDD.
* How uncertain the caregiver feels about his or her child s PDD.
* What the caregiver feels about him- or herself as a caregiver of a child with a PDD.
* General questions about the caregiver, his or her family and the child with a PDD.

Conditions

  • Autism
  • Asperger's Syndrome
  • Rett's Disorder

Sponsors & Collaborators

  • National Human Genome Research Institute (NHGRI)

    lead NIH

Principal Investigators

  • Barbara B Biesecker · National Human Genome Research Institute (NHGRI)

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2007-06-27
Completion
2015-12-07

Countries

  • United States

Study Locations

More Related Trials

Entities

Diseases

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT00496210 on ClinicalTrials.gov