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Collaboration for Down Syndrome Progress (CDP)

NCT07625579 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 1400

Last updated 2026-06-04

No results posted yet for this study

Summary

The Collaboration for Down Syndrome Progress (CDP) is a long-term study that follows people with Down syndrome of all ages. The goal is to better understand their health, development, and everyday experiences over time. Participants and their caregivers will answer questions, share medical information, and may give samples like blood or saliva. Some participants may also take part in optional activities such as sleep studies, movement tracking, or brain imaging. By collecting the same types of information at many sites, the CDP will help researchers learn why certain health conditions are more common in people with Down syndrome and how to improve care and quality of life.

Conditions

  • Down Syndrome
  • Chromosome Disorders
  • Intellectual and Developmental Disabilities

Sponsors & Collaborators

  • National Institutes of Health (NIH)

    collaborator NIH

  • National Heart, Lung, and Blood Institute (NHLBI)

    collaborator NIH

  • Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)

    collaborator NIH

  • National Institute on Aging (NIA)

    collaborator NIH

  • RTI International

    lead OTHER

Principal Investigators

  • Jessica E Hunter, PhD · RTI International

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2026-05-01
Primary Completion
2029-08-31
Completion
2029-08-31

Countries

  • United States

Study Locations

More Related Trials

Entities

Diseases

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT07625579 on ClinicalTrials.gov