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DS-Connect®: The Down Syndrome Registry

NCT01950624 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 100000

Last updated 2025-01-31

No results posted yet for this study

Summary

The goal of this study is to develop a registry for Down syndrome (DS) to facilitate research participation by individuals with Down syndrome.

DS-Connect® is an online survey tool designed to collect demographic data and health information from individuals with DS. It is open to all people with Down syndrome.

The purposes of DS-Connect® are:

1. To identify the various phenotypic manifestations of DS.
2. To identify individuals with DS who may be eligible for research studies or new clinical trials, based on specific information about their diagnosis and health history.

Conditions

  • Down Syndrome

Sponsors & Collaborators

  • Linda Crnic Institute for Down Syndrome

    collaborator UNKNOWN

  • Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)

    collaborator NIH

  • University of Colorado, Denver

    lead OTHER

Principal Investigators

  • Joaquin M Espinosa, Ph.D. · Linda Crnic Institute for Down Syndrome, University of Colorado Anschutz Medical Campus

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2013-09-06
Primary Completion
2035-06-30
Completion
2035-06-30

Countries

  • United States

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT01950624 on ClinicalTrials.gov