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Stakeholders of Rare Diseases Informing Values In Neuroethics

NCT07314736 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 385

Last updated 2026-05-22

No results posted yet for this study

Summary

The purpose of this research study is to learn more about the perspectives of key stakeholders-patients, families, healthcare providers, and researchers-on the ethical challenges of small-scale, personalized treatment trials for rare neurological diseases (RND).

Conditions

  • Rare Disorder
  • Disorder, Neurologic

Sponsors & Collaborators

Principal Investigators

  • Liza M. Johnson, MD, MPH, MSB · St. Jude Children's Research Hospital

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2026-06-30
Primary Completion
2031-01-31
Completion
2031-01-31

Countries

  • United States

Study Locations

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Entities

Companies

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT07314736 on ClinicalTrials.gov