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Motor Outcomes to Validate Evaluations in Pediatric FSHD (MOVE Peds)

NCT06847282 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 80

Last updated 2026-02-25

No results posted yet for this study

Summary

The primary goal of this study is to validate motor and functional outcomes and refine clinical trial strategies for pediatric-onset FSHD

Conditions

  • Muscular Dystrophy, Facioscapulohumeral

Sponsors & Collaborators

  • National Institute of Neurological Disorders and Stroke (NINDS)

    collaborator NIH

  • University of Rochester

    collaborator OTHER

  • Stanford University

    collaborator OTHER

  • Duke University

    collaborator OTHER

  • University of California, Irvine

    collaborator OTHER

  • Kennedy Krieger Institute, Baltimore, MD

    collaborator UNKNOWN

  • University of Utah

    collaborator OTHER

  • Seattle Children's Hospital

    collaborator OTHER

  • University of Iowa

    collaborator OTHER

  • Coriell Institute

    collaborator UNKNOWN

  • Leiden University Medical Center

    collaborator OTHER

  • Murdoch Childrens Research Institute

    collaborator OTHER

  • University of Kansas Medical Center

    lead OTHER

Principal Investigators

  • Jeffrey Statland, MD · University of Kansas Medical Center

Eligibility

Min Age
5 Years
Max Age
17 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2025-05-22
Primary Completion
2027-05-31
Completion
2028-05-31

Countries

  • United States
  • Australia

Study Locations

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Entities

Companies

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT06847282 on ClinicalTrials.gov