ATHNdataset Registry
NCT06820515 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 200000
Last updated 2026-04-21
Summary
The Hemophilia Treatment Center (HTC) where you receive care is working with The American Thrombosis and Hemostasis Network (ATHN) to look at the quality of life of people with blood disorders and problems.
Doctors, scientists, policymakers, and other health care providers need a large amount of information from a lot of people to answer scientific, public health, and policy questions about better ways to treat blood disorders. They will use the information from the ATHNdataset to answer these questions.
Conditions
- Hemophilia
- Thrombosis
- Hemophilia A
- Hemophilia B
- Sickle Cell Disease
- Glanzmann Thrombasthenia
- Bleeding Disorder
- Blood Disorder
- Von Willebrand Diseases
Sponsors & Collaborators
-
American Thrombosis and Hemostasis Network
lead NETWORK
Principal Investigators
-
Tammuella Chrisentery-Singleton, M.D. · American Thrombosis and Hemostasis Network
Eligibility
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2024-10-25
- Primary Completion
- 2054-10-25
- Completion
- 2055-10-31
Countries
- United States
Study Locations
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