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International CRDS Registry

NCT06508164 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 500

Last updated 2026-02-05

No results posted yet for this study

Summary

Calcium Release Deficiency Syndrome (CRDS) is a newly discovered genetic arrhythmia syndrome that confers a risk of life-threatening arrhythmias secondary to RYR2 loss-of-function. The International CRDS registry has been designed to facilitate large-scale evaluation of CRDS, including its phenotypic spectrum, approaches to risk stratification, and optimal treatment strategies.

Conditions

  • Calcium Release Deficiency Syndrome

Sponsors & Collaborators

  • Canadian Institutes of Health Research (CIHR)

    collaborator OTHER_GOV

  • Population Health Research Institute

    lead OTHER

Principal Investigators

  • Thomas M Roston, MD, PhD · University of British Columbia

  • Jason D Roberts, MD MAS · McMaster University

  • SR Wayne Chen, PhD · University of Calgary

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2024-11-21
Primary Completion
2050-12-31
Completion
2050-12-31

Countries

  • United States
  • Australia
  • Belgium
  • Canada
  • Denmark
  • France
  • Israel
  • United Kingdom

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT06508164 on ClinicalTrials.gov