International Primary Ciliary Dyskinesia Cohort

Summary

The iPCD Cohort is an international cohort that assembles available retrospective datasets and prospectively newly collected clinical and diagnostic data from patients suffering from primary ciliary dyskinesia (PCD) worldwide, to answer pertinent questions on clinical phenotype, disease severity, prognosis and effect of treatments in patients with this rare multiorgan disease.

Conditions

• Primary Ciliary Dyskinesia
• Kartagener Syndrome

Sponsors & Collaborators

• European Commission

  collaborator OTHER

• Swiss National Science Foundation

  collaborator OTHER

• University of Southampton

  collaborator OTHER

• Pierre and Marie Curie University

  collaborator OTHER

• Bar-Ilan University, Israel

  collaborator OTHER

• University of Padova

  collaborator OTHER

• University Hospital, Gasthuisberg

  collaborator OTHER

• Oslo University Hospital

  collaborator OTHER

• Amsterdam UMC, location VUmc

  collaborator OTHER

• Royal Brompton & Harefield NHS Foundation Trust

  collaborator OTHER

• Marmara University

  collaborator OTHER

• Ruhr University of Bochum

  collaborator OTHER

• Genetic Disorders of Mucociliary Clearance Consortium

  collaborator UNKNOWN

• Institute of Tuberculosis and Lung Disorders, Rabka Poland

  collaborator UNKNOWN

• University of Sydney

  collaborator OTHER

• Copenhagen University Hospital, Denmark

  collaborator OTHER

• University Hospital Muenster

  collaborator OTHER

• Hannover Medical School

  collaborator OTHER

• Hospital de Niños R. Gutierrez de Buenos Aires

  collaborator OTHER

• University of Cyprus

  collaborator OTHER

• Medical Centre Dr Dragisa Misovic

  collaborator UNKNOWN

• Hacettepe University

  collaborator OTHER

• University Hospital, Motol

  collaborator OTHER

• Clinica de neumologia pediatrica Compensar

  collaborator UNKNOWN

• Attikon Hospital

  collaborator OTHER

• University of Leicester

  collaborator OTHER

• University of Bern

  lead OTHER

Principal Investigators

• Claudia E Kuehni, Prof · University of Bern

Eligibility

Sex

ALL

Healthy Volunteers

No

Timeline & Regulatory

Start

2013-01-31

Primary Completion

2050-12-31

Completion

2080-12-31

Countries

• Switzerland

Study Locations