Establishment of a Database for Long-Term Monitoring of Patients With Nephropathic Cystinosis

NCT00004312 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 400

Last updated 2005-06-24

No results posted yet for this study

Summary

OBJECTIVES: I. Establish a computerized databank to monitor the progress of patients with cystinosis treated with cysteamine.

II. Track and monitor all patients including renal transplant, dialysis and post renal transplants.

Conditions

  • Cystinosis

Sponsors & Collaborators

  • Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)

    collaborator NIH
  • University of California, San Diego

    collaborator OTHER
  • National Center for Research Resources (NCRR)

    lead NIH

Principal Investigators

  • Jerry A. Schneider · University of California, San Diego

Eligibility

Min Age
0 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
1999-10-31

Countries

  • United States

Study Locations

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Entities

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT00004312 on ClinicalTrials.gov